I jumped through the four screening hoops and just started either the drug or the placebo for the Ubenimex drug trial at Standford. Info on the trial is at https://clinicaltrials.gov/ct2/show/NCT02700529 . First hoop was the blood test and visit with Dr. Stanley Rockson of Stanford. Then I had the Lymphoscintigraphy test for the second visit. They inject dye between the toes on both feet and make sure your lymph system isn't moving the dye. It is a barbaric test but it only hurts for 10 seconds when the doctor injects the dye between the toes. Two injections per foot. Yowser. Third visit was measuring the legs and a bioempediance test to determine the severity of the fluid component of lymphedema. Fourth visit if the measurements stayed the same meant I got in the trial and the computer picked whether I get the drug or the placebo. 5 capsules 150mg three times a day for a daily dosage of 450 mg/day. So I got through all the screening and now started with the drug. Next visit is Aug. 1, with several more trips back to Stanford between now and Jan. 2018. Hope the trial is a success and that this new drug is available and helpful to all lymphedema patients.
Here's a link to how Stanford thinks Ubemimex will help us https://med.stanford.edu/news/all-news/2017/05/study-finds-first-possible-drug-treatment-for-lymphedema.html